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Patient Perspectives

Patient Perspectives at AUA2025The American Urological Association’s Patient Perspectives Program is an event that uplifts the patient voice by providing a platform to share personal experiences and raise awareness on urologic conditions and cancers. Hosted during the AUA’s Annual Meeting and now in its fourth year, the program empowers patients, caregivers/care partners, advocates, and healthcare providers to share their personal experiences on a national stage to an audience of urologists from around the world.

The following articles are written by participants of the 2025 Patient Perspectives program.

Barriers to Finding Care for Adults With Bladder Exstrophy: A Patient Advocacy Perspective by Kimberly Allen

Perioperative Planning: Back to the Basics by Alana Baird

Using Podcasts to Share Research Results (Including Clinical Trials) by Rick Bangs

True Story of What Interstitial Cystitis/Bladder Pain Syndrome Means for an Immigrant in the US by Alena Beliauskaya

Managing Kidney Cancer Through Exercise and Wellness by Gregory Biddulph

Living a Life After Prostate Cancer With Purpose by Robert Ginyard

Managing Treatment-Related Hand/Foot Syndrome in Renal Cell Carcinoma: Patient-Shared Strategies by Carie Gort

Life After a Shared Cancer Diagnosis and Lessons Learned by Tom and Lauren Hulsey

A Mother’s Journey: From Caregiver to Advocate for Renal Medullary Carcinoma by Ritchie Johnson

Mental Health and Cancer Care by Paul Nelson

The Prostate Cancer Patient as Offensive Coordinator (a Football Analogy) by Richard Rutherford

The Role of Informed Consent by Denise Szalkowski

Shifting the Narrative: Patient Stories of Active Surveillance in Kidney Cancer Communities by Tracie Titus

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